Privacy Policy

The Clinical Register

Privacy policy

This Privacy Policy explains how The Clinical Register collects, uses, stores, and protects personal information. We are committed to transparency, data minimization, and responsible stewardship of user information.

 
Important: Registry submissions must not contain direct participant identifiers or individual-level patient data. 

1) Information we collect

  • Account information (name, email address, institutional affiliation)

  • Study registration details submitted by users

  • Communication records submitted via contact forms

  • Technical data such as IP address, browser type, and device metadata

  • Payment confirmation data processed through secure third-party providers

2) How we use information

  • To create and manage user accounts

  • To process study registrations and assign Registration IDs

  • To maintain audit trails and version history

  • To respond to inquiries and governance requests

  • To monitor platform security and prevent misuse

  • To comply with legal and regulatory obligations

3) Public versus private information

  • Study metadata submitted for registration becomes publicly accessible.

  • Account credentials and administrative logs remain private.

  • Payment information is handled by secure third-party processors and is not stored on our servers.

4) Data retention

  • Public registry records are retained long term to preserve citation integrity.

  • Administrative and security logs are retained for a reasonable operational period.

  • User account information may be anonymized or deleted upon lawful request.

5) Security measures

  • Role-based access control and restricted administrative permissions

  • Encrypted connections (HTTPS) for data transmission

  • Secure hosting infrastructure and regular system updates

  • Monitoring and logging of security-related events

6) Cookies and analytics

  • Cookies may be used for authentication and session management.

  • Anonymous analytics may be used to improve platform performance.

  • Users may adjust browser settings to manage cookie preferences.

7) User rights

  • Request access to personal account information

  • Request correction of inaccurate data

  • Request deletion or anonymization where legally permissible

  • Submit privacy-related concerns to the governance team

8) Changes to this policy

This Privacy Policy may be updated periodically. Material changes will be reflected by an updated “Last updated” date.

Privacy and transparency matter

If you have questions about data handling or privacy, contact the governance team.

Contact governance

Last updated: 2026-02-16